S1E25 – Interview with Tim Young – CEO at Smart Access Limited

Tim Young – CEO at Smart Access Limited

Tim Young is the CEO of Smart Access, which has developed a data collection, categorisation, and navigation system for pedestrians with access needs to plan a safe journey. Tim started his business, which aims to improve infrastructure accessibility, after facing many obstacles and uncertainty when traveling around the country as a tetraplegic and wheelchair user.

Tim also uses his experience in his role as Chief Technology Officer of My Life My Voice to develop digital tools and conduct training on technology to improve outcomes and opportunities for disabled people.

Tim has completed a MSc in Psychology, developed an educational video game, a work placement program for disabled job seekers, and Co-founded the Magical Bridge Trust to build more accessible playgrounds.

Episode chapters

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast guest – Tim Young

[00:33] Ad – Get interviewed for Disability Disrupters podcast

[24:29] Deep Dive – Unpaid labour critique

[41:10] Goodbye from Dr Pam

[41:23] Advert – Tipjar support for the podcast

Disability Self-empowerment: Module One: Take charge of your future!

Available on amazon here: https://www.amazon.com/Disability-self-empowerment-Module-charge-future-ebook/dp/B0FJLKGLTV

Disability Responsiveness New Zealand offers personalised mentoring and workshops – view the content of these at https://drnz.co.nz/about-our-workshops-and-programmes/

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio and transcript editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

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S1E24 – Interview with Sadie Dingfelder – Author, science journalist, neurodiversity advocate

Sadie Dingfelder – Author, science journalist, neurodiversity advocate

Sadie has prosopagnosia — face blindness — which means she can’t recognize anyone by their face. Not her mother, not her coworkers, not her husband (she once grabbed a jar of peanut butter out of a stranger’s cart because she thought he was her husband. He was two aisles over).

Sadie has written a memoir about her face blindness and other conditions, called Do I Know You ? , Temple Grandin wrote the foreword.

Because of her Face blindness, Sadie built her own assistive tech system: She photographs everyone she meets and writes notes about them. What they look like, what they were wearing, what we talked about. It’s basically a manual face database. It works, mostly, but it’s exhausting — and it freaks people out when they notice.

Here’s the irony: the technology Sadie actually needs is the one everyone else fears. Facial recognition. The thing governments are banning and privacy advocates are protesting is, for her, just… what normal people already have built into their brains. Sadie tried an early version of a face recognition app right when the pandemic hit — and of course **it didn’t work with masks**, which is exactly when a faceblind person needs it most, because masks wipe out the few cues they do use (hair, glasses, context).

Face blindness affects roughly 1 in 50 people, but there’s no accommodation framework, no widely available app, and most people don’t even know it exists. Sadie didn’t find out she had it until she was 40 — along with three other rare neurological conditions (stereoblindness, aphantasia, and severely deficient autobiographical memory), all missed for decades because she had just learned to work around them.

Sadie is a former reporter for the Washington Post and currently works for National Geographic in the USA.

You can find Sadie on Sadie’s website where you can follow her on social media, contact her and read her blog

If you prefer a hardcopy of her memoir and are located in New Zealand, you can purchase Do I Know You ? at PaperPlus

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast guest – Sadie Dingfelder

[00:43] Ad – Get interviewed for Disability Disrupters podcast

[01:14] Interview with Sadie Dingfelder

[28:01] Deep Dive – Why does Society label People instead of recognising that it is systems that are impaired

[50:21] Goodbye from Dr Pam

[50:34] Advert – Tipjar support for the podcast

Disability Self-empowerment: Module One: Take charge of your future!

Available on amazon here: https://www.amazon.com/Disability-self-empowerment-Module-charge-future-ebook/dp/B0FJLKGLTV

Disability Responsiveness New Zealand offers personalised mentoring and workshops – view the content of these at https://drnz.co.nz/about-our-workshops-and-programmes/

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio and transcript editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


The exhaustion of continuous education – By Dr Pamela J. MacNeill

There’s a particular kind of tiredness that comes from having to explain your existence over and over again. It’s not the tiredness of a long day or a late night. It’s the heaviness that settles in your chest when you realise—again—that the world still expects you to be the teacher, even in moments when you’re the one who needs support.

For many blind people, this happens in places where you’d hope it wouldn’t: hospitals, clinics, emergency departments. You arrive needing care, but before anyone even asks what’s wrong, you’re already fielding questions about how much you can see, whether you can read the forms, whether you “want a wheelchair,” or whether someone should “guide you by the arm like this.” You’re suddenly responsible for correcting unsafe guiding, explaining that blindness isn’t a spectrum of “a bit blurry,” and reminding trained professionals that disability doesn’t erase your autonomy.

It’s not that people are malicious. It’s that the baseline expectation is that you will educate them. Every time. Even when you’re in pain. Even when you’re frightened. Even when you’ve already delivered hundreds of disability responsiveness workshops to medical staff who should know better by now.

There’s a moment—quiet, internal—when you think: Why am I still having to say this? Why hasn’t this sunk in? And that moment hurts more than the awkward questions or the clumsy guiding. It’s the realisation that your lived experience, your expertise, your training, your voice… somehow still hasn’t shifted the system enough for you to simply be a patient instead of a teaching opportunity.

The frustration builds not because people are curious, but because the burden is always on you. You’re the one who has to correct the nurse who grabs your arm without asking. You’re the one who has to explain that “just follow me” is meaningless when you can’t see where they’re pointing. You’re the one who has to reassure them that blindness doesn’t make you fragile, helpless, or inspirational—it just makes you blind.

And underneath all of it is the quiet wish that, just once, you could walk into a medical setting and be treated as someone who belongs there without needing to justify or explain your body. That your presence wouldn’t trigger confusion or assumptions. That the training you’ve poured into the system would show up in the way people interact with you.

It’s not about wanting special treatment. It’s about wanting ordinary treatment—competent, respectful, informed. The kind of treatment sighted people take for granted.

The emotional labour of constantly educating others is invisible, but it accumulates. It’s the weight of every conversation where you’ve had to correct someone gently so they don’t feel embarrassed. It’s the mental calculation of whether you have the energy to explain something again, or whether you’ll just let it slide this time. It’s the knowledge that if you don’t speak up, the next blind person will face the same ignorance.

And that’s the hardest part: knowing that your silence might make someone else’s experience worse, so you keep teaching even when you’re exhausted. You keep advocating even when you shouldn’t have to. You keep explaining because the alternative is letting the system stay exactly as it is.

There’s strength in that, yes. But there’s also grief. Grief for the energy spent, the moments lost, the care you didn’t receive because you were too busy educating the people who were supposed to be helping you.

And yet, you keep going—not because you want to be an inspiration, but because you deserve a world where you don’t have to be one.

Disability and Employment Struggles

The phrase “everyone is having a hard time getting work” is often presented as reassurance. It is meant to soften the blow for disabled job seekers by suggesting their struggle is not personal. But from a disability advocacy perspective, that statement can also erase the very real, lifelong structural discrimination disabled people experience long before a recession, labour market downturn, or youth employment crisis arrives.

There is a profound difference between entering a difficult job market for the first time and spending an entire lifetime fighting simply to be allowed through the door.

For many disabled New Zealanders, the employment struggle does not begin at graduation. It begins in childhood. It begins in classrooms where support is inconsistent, where expectations are lowered, where students are underestimated or segregated. It continues into tertiary education, where disabled students often have to advocate constantly for accessible materials, assessments, transport, technology, or basic inclusion. Many become experts in resilience long before we ever submit a CV.

By the time a disabled person reaches the workforce, we are often already exhausted from years of proving we belong.

So if society even bothers to respond to our unemployment with “well, everyone is struggling,” it ignores the unequal starting points. It frames systemic discrimination as merely unfortunate timing.

That is not equality.

A nondisabled graduate facing a difficult labour market is encountering a barrier. A disabled graduate may be encountering layered barriers: inaccessible recruitment systems, employer prejudice, assumptions about productivity, transport limitations, benefit system disincentives, inadequate workplace accommodations, and the emotional toll of repeated rejection rooted not in capability but discomfort and bias.

The issue is not simply unemployment. It is unequal access to opportunity.

One of the cruellest realities disabled professionals face is the contradiction between qualifications and employability. Many disabled people are told throughout our education that success depends on gaining qualifications, working hard, and persevering. Yet after meeting every expectation placed upon us, we still encounter suspicion from employers. Gaps in employment become interpreted not as evidence of systemic exclusion, but as personal failure.

And those gaps matter disproportionately.

A nondisabled person with interruptions in employment may be viewed as someone who had bad luck, changed careers, travelled, or experienced economic hardship. A disabled person with identical gaps is often viewed through a deficit lens: unreliable, risky, fragile, expensive, or “too hard.” Employers may never say this openly, but disabled applicants experience its consequences repeatedly.

This creates a cycle of psychological harm. People begin internalising the message that no matter how qualified we become, we will still be seen as less employable than “normal people.” The repeated need to justify one’s existence in professional spaces becomes a form of social attrition.

And yet many disabled people have demonstrated extraordinary capability when actually given opportunities.

The irony is that disabled workers often develop skills employers claim to value: adaptability, problem-solving, persistence, creativity, empathy, and resilience under pressure. Many have navigated inaccessible systems their entire lives. We know how to innovate because survival has required it.

When disabled people do obtain good jobs, we frequently excel. But too often, employment continuity depends less on competence and more on whether a particular manager or organisation is genuinely inclusive. One visionary employer can transform someone’s career trajectory. A prejudiced employer can derail it overnight.

This inconsistency exposes an uncomfortable truth: the problem is not disabled people’s capacity to work. The problem is society’s inconsistent willingness to include us.

That is why it is deeply problematic to suggest disabled professionals should quietly step aside because the broader population is also struggling. Economic hardship does not cancel out discrimination. If anything, downturns often intensify it. When competition increases, marginalised groups are usually pushed further to the edges first.

History shows this repeatedly. Disabled workers are often among the last hired and first discarded.

Advocacy in this space therefore cannot merely focus on “helping disabled people become work ready.” Many already are work ready. Some are overqualified. The conversation must shift toward employer accountability, systemic accessibility, and confronting ableism in hiring practices.

This includes difficult but necessary questions:

• Why are disabled applicants still filtered out before interviews?

• Why are disclosure decisions still fraught with risk?

• Why are workplace accommodations often treated as burdens rather than ordinary aspects of inclusion?

• Why are employment gaps interpreted differently depending on whether someone is disabled?

• Why is disabled unemployment persistently higher even among well educated populations?

These are not individual failings. They are indicators of systemic inequity.

There is also a moral dimension to this discussion. A society that tells disabled people to study, work hard, and contribute, while simultaneously denying them equitable access to employment, creates a profound breach of trust. It asks disabled people to endlessly invest in systems that do not invest equally in them.

That betrayal accumulates over time.

It affects mental health, confidence, financial stability, housing security, relationships, and social participation. Unemployment for disabled people is not merely an economic issue. It is tied to dignity, belonging, and recognition of human worth.

And importantly, disabled people are not asking for charity. We are asking for fairness.

Fairness means recognising that “equal treatment” in an unequal system simply preserves inequality. It means understanding that diversity hiring is not about lowering standards, but correcting exclusionary assumptions about who competence looks like. It means valuing lived experience as part of professional expertise rather than viewing disability solely through a medical or deficit model.

Most of all, fairness means rejecting the idea that disabled people should patiently wait their turn until conditions improve for everyone else.

Because for many disabled New Zealanders, the waiting has already lasted a lifetime.

S1E23 – Interview with Dan Shepherd – General Manager, Community and Inclusion

Dan Shepherd

Dan is Blind Low Vision NZ’s General Manager, Community & Inclusion, and leads a portfolio of work that is community facing and aims to change attitudes towards vision loss and people who are blind, deafblind or low vision. Diagnosed with Retinitis Pigmentosa when he was 15, Dan subscribes to a ‘nothing at us, everything with us’ approach to finding solutions that work for disabled people.

Leading an authentic, 100% client led team to educate and influence accessible and inclusive communities, after his own journey of adjustment and acceptance Dan is proud be part of a bigger picture leading change for disabled people in Aotearoa New Zealand.

Article on Dan being appointed as General Manager, Community and Inclusion, Blind and Low Vision New Zealand.

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast Episode

[00:40] Podcast seeking contributions from Listeners

[01:04] Introduction to Podcast Guest – Dan Shepherd

[01:22] Interview with Dan Shepherd

[23:52] Advert – Bill asking for Tip jar contributions

[24:42] Deep Dive – A challenge to inspiration porn

[29:09] Goodbye from Dr Pam

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


S1E22 – Interview with Yenn Purkis – Autistic Author, Speaker, Advocate

Yenn Purkis

Yenn Purkis is an Autistic and ADHD, non-binary, asexual advocate and author. They also have a diagnosis of atypical schizophrenia and anxiety. Yenn has been a disability advocate since 2005 when their first book, the autobiography Finding a Different Kind of Normal, was accepted for publication.

Yenn has worked as Deputy CEO (External Relations) at the Disability Leadership Institute, served as Accessibility Manager for Rebus Theatre, and worked as a public servant for 17 years.

A prolific author, Yenn has written or co-authored 18 published books. They have been presenting since 2002 and have delivered talks worldwide, including presenting at TEDx Canberra twice. Yenn is a sought-after speaker with extensive lived and professional experience in disability advocacy and systemic inclusion.

Their website is: https://yennpurkis.com/

For a list of all their published books: https://yennpurkis.com/books/

Some of Yenn’s TEDx and conference presentations:

Brimbravo, where you can book Yenn as a speaker https://brimbravo.com/speakers-profile-yenn-purkis/

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast Guests

[00:41] Interview with Yenn Purkis

[27:38] DRNZ – Disability Responsiveness New Zealand

[32:42] Goodbye from Dr Pam

Disability Self-empowerment: Module One: Take charge of your future!
Available on amazon

Disability Responsiveness New Zealand offers personalised mentoring and workshops

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio, transcript and captions editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


S1E22 – Interview with Yenn Purkis – Autistic Author, Speaker, Advocate

Yenn Purkis

Yenn Purkis is an Autistic and ADHD, non-binary, asexual advocate and author. They also have a diagnosis of atypical schizophrenia and anxiety. Yenn has been a disability advocate since 2005 when their first book, the autobiography Finding a Different Kind of Normal, was accepted for publication.

Yenn has worked as Deputy CEO (External Relations) at the Disability Leadership Institute, served as Accessibility Manager for Rebus Theatre, and worked as a public servant for 17 years.

A prolific author, Yenn has written or co-authored 18 published books. They have been presenting since 2002 and have delivered talks worldwide, including presenting at TEDx Canberra twice. Yenn is a sought-after speaker with extensive lived and professional experience in disability advocacy and systemic inclusion.

Their website is: https://yennpurkis.com/

For a list of all their published books: https://yennpurkis.com/books/

Some of Yenn’s TEDx and conference presentations:

Brimbravo, where you can book Yenn as a speaker https://brimbravo.com/speakers-profile-yenn-purkis/

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast Guests

[00:41] Interview with Yenn Purkis

[27:38] DRNZ – Disability Responsiveness New Zealand

[32:42] Goodbye from Dr Pam

Disability Self-empowerment: Module One: Take charge of your future!
Available on amazon

Disability Responsiveness New Zealand offers personalised mentoring and workshops

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio, transcript and captions editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


S1E21 – Kylee Maloneys award winning broadcast with Victoria Maxwell – Crazy for Life

In this special edition of the Disability Disrupters podcast, Kylee Maloney presents her award winning broadcast, interviewing Victoria Maxwell about Victoria’s one woman show called Crazy for Life. Kylee was February 2026’s podcast guest, so check her episode, Episode 20, after this one.

Victoria Maxwell

Victoria Maxwell, BFA, BPP*  is a sought-after international (and funny) keynote speaker, performing artist and workshop leader. She uses her personal story of recovery from mental illness to increase awareness, transform negative beliefs and ignite powerful conversations about mental health.

Blending 30 years as an actor, and 15 as a wellness warrior, Victoria inspires people to take immediate action to improve their well-being. 

The Mental Health Commission of Canada has endorsed her one-of-a-kind keynote performances as one of the top anti-stigma interventions that creates lasting shifts.

Two scientific studies have shown her theatrical keynotes reduce stigma. Learn about the research results here and here.

She was named one of Canada’s top leaders in Mental Health by the National Centre for Addiction and Mental Health centre (CAMH) and honoured with the National Difference Makers award.

Her plays, keynotes and other efforts have won or been nominated for over 14 awards. They include the Entertainment Industries Council PRISM Award, SAMHSA Voice Award, best foreign stage play at the Moondance International Film Festival, and one of Top Ten Entrepreneurs with Disabilities.

Prior to her diagnosis, Victoria was an actress during the 90’s, playing small roles opposite actors such as X-Files’ David Duchovny, John Travolta and Johnny Depp. She’s blogged for Psychology Today for over 8 years.

While her story is her own, the messages are universal. Even the most veteran of conference delegates are energized and enlightened by her keynotes and workshops.

Victoria’s website is here: https://victoriamaxwell.com/

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast

[00:44] Kylee and Victoria

[29:13] Advert – Tipjar support for the podcast

[30:06] Goodbye from Dr Pam

Disability Self-empowerment: Module One: Take charge of your future!

Available on amazon here: https://www.amazon.com/Disability-self-empowerment-Module-charge-future-ebook/dp/B0FJLKGLTV

Disability Responsiveness New Zealand offers personalised mentoring and workshops – view the content of these at https://drnz.co.nz/about-our-workshops-and-programmes/

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio and transcript editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


S1E20 – Interview with Kylee Maloney – Creative and Student of Life

Kylee Maloney

Kylee Maloney has been a creative for as long as she can remember: from trying to make music with two hands on the piano at three to writing fanfiction at nearly 60, she has always enjoyed using her voice, words and music as modes of self-expression — and sometime employment. As a survivor of abuse in the care of RNZFB, she works as Administrator for the small group of survivors tasked with constructing a compensation and redress framework for positive change. She also enjoys reading, weight lifting, a decent glass of wine and setting the world to rights with a small and select group of friends. As a newly-diagnosed autist, she now proudly wears the sunflower and hopes to continue to help others through promotion of self-knowledge as a tool for growth.

The song performed by Kylee after her interview is called, The Water is Wide, from her album, Early One Celtic Morning.

The album is available on Spotify and Apple Music

Connect with Kylee:

  • Kylee has a professional clone of her voice on Eleven Labs. If you would her to read to you and you have Eleven Reader, add Kylee here:

https://elevenlabs.io/app/voice-lab/share/c2b0aec5bdab1dd57f61079e0ad3a1d694cc1657aaa1dfef1e0e31bccf2c3f78/pcKdPWtbF6bM9o7NHjCI

  • The link to Kylee’s fanfic on AO3 is here:

https://archiveofourown.org/users/TheKiwiCelt/works

  • Kylee is featured

in an interview here

about her IT course on radio New Zealand

Podcast Chapters

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast Guest

[01:05] Interview with Kylee Maloney

[37:53] Goodbye from Dr Pam

[38:07] Advert – Tipjar support for the podcast

Dr Pam’s Disability Self-empowerment: Module One: Take charge of your future!

Available on amazon here: https://www.amazon.com/Disability-self-empowerment-Module-charge-future-ebook/dp/B0FJLKGLTV

Disability Responsiveness New Zealand offers personalised mentoring and workshops – view the content of these at https://drnz.co.nz/about-our-workshops-and-programmes/

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio and transcript editor : Britta Offergeld

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript


S1E19 – Interview with Andrew Gadd – Disability Advocate and Content Creator

Andrew Gadd

Andrew is a passionate disability advocate, content creator and aspiring YouTuber. He has a passion for showcasing the positives of leading a fulfilling life with a physical condition.  

You can connect with Andrew here:

Linktree: 

https://linktr.ee/AGGUIDES

TikTok: 

https://www.tiktok.com/@andrew_gadd?_r=1&_t=ZN-92TAGl0r02Y

YouTube: 

https://youtube.com/@andrew_gadd?si=ymO5vaHGG8sCzn12

[00:00] Introduction – Disability Disrupters Podcast

[00:21] Introduction to Podcast Guest – Andrew Gadd

[01:04] Interview with Andrew Gadd

[21:49] Employment Matters

[25:20] Advert – Disability Self-empowerment: Module one: Take charge of your future!

[26:35] Goodbye from Dr Pam

[26:56] Advert – Tipjar support for the podcast

Disability Self-empowerment: Module One: Take charge of your future!

Available on amazon here: https://www.amazon.com/Disability-self-empowerment-Module-charge-future-ebook/dp/B0FJLKGLTV

Disability Responsiveness New Zealand offers personalised mentoring and workshops – view the content of these at https://drnz.co.nz/about-our-workshops-and-programmes/

Audio Shorts, background music provided by http://www.andrelouis.com

Podcast audio and transcript editor : Britta Offergeldhttps://youtube.com/@andrew_gadd?si=ymO5vaHGG8sCzn12

Support Disability Disrupters by contributing to their tip jar: https://tips.pinecast.com/jar/disability-disrupters

Read transcript